Blaire's Story

Young Blaire smiles for a photo in her Michigan outfit

Blaire received her heart transplant on August 6th, 2013. She was two years old at the time, about a month shy of her third birthday. She had been diagnosed with restrictive cardiomyopathy and severe heart failure about a month earlier and was discharged home with a PICC line during the time we were waiting for the call we didn't know would come.

Blaire spent her time waiting making gifts for others and playing with her family. She was shy of the PICC line in her right arm and very protective of it. She kept it under her blanket, "Blanky," and never pulled at it or fussed much, except when the dressings needed to be changed. She was then, and is now, the picture of bravery. 

Being two years old, she may have known what was going on around her, but as she has gotten older, she has been able to really come to a greater understanding. She is now 5 years old and is inquisitive about her heart. She asks questions and understands. Blaire is very grateful for her life, grateful to God, to her transplant team at U of M, and to the donor family. Her life has been restored.

She is developing well. She seems to brighten the lives of everyone she comes into contact with, be it classmates, passers-by in the grocery store, or other kids at the clinic. To Blaire, bravery is a way of life. Most kids her age and older cry and protest at their blood being drawn. But not her. She understands the importance of her care, what is being done and why. Although the medicines she takes don't taste good and cause her stomach pain, she still takes them exactly as she should.

Blaire, and we as a family are eternally grateful for the gift of life, the physicians and transplant team at the U of M for their excellent care and follow through. Blaire is truly a Wolverine for Life. We hope her story will inspire others to choose to donate life and bring awareness to CHD.

- Alyscia Kenewell

Featured News & Stories clinical team and patient standing together
Health Lab
Planting a tree, and hope, for a heart healthy future
A complex mitral valve repair by Michigan Medicine cardiac specialists helps restore health and happiness to one Michigan patient and his family.
taking a selfie man with two women in white coats
Health Lab
Double lung transplant patient returns yearly to share gratitude with care team
After a double lung transplant sixteen years ago, Russ Kosteniuk is doing well and makes a point to come back to see those who cared for him.
faucet close up dripping
Health Lab
Is dribbling after peeing normal?
A urologist discusses post-void dribble and how to help prevent it, and when to speak with your doctor.
Politics depression image
Health Lab
5 ways to manage politically induced stress
A Michigan Medicine psychiatrist offers strategies for how to be mindful of depression and anxiety symptoms around the topic of politics.
brain drawn
Health Lab
The brain in balance
In a recent study, using network neuroscience, investigators found a way to objectively determine the balance of integration and segregation in fMRI-measured brain signals during wakefulness as well as during sleep and anesthesia.
uterus close up grey and teal microscope uterine cells pink and blue background
Health Lab
Mapping the human uterus: diverse cells interact in surprising ways
Michigan Medicine researchers identify new uterine cell types, how they change and how work together through cycles, laying the groundwork for studying challenges like infertility.