Combating Crohn’s with comics

A teenage patient’s unique way of detailing his experience with Crohn’s disease

5:00 AM

Author | Tessa Roy

boy sketching comics
Sawyer Fernandez's drawings. Photos provided by Fernandez

Sawyer Fernandez has spent more time in the hospital than a typical 17-year-old, but he’s created a unique way to help himself manage his condition while inspiring others in the process.

Sawyer has Crohn's disease, a chronic disease that causes inflammation of the digestive tract. The disease has no cure, but there are multiple medications available to treat it.

“Most patients respond very well to medications; however, there are some patients who do not, and instead require surgical interventions. Sawyer was one of those patients,” said Seth Iskowitz, M.D., a pediatric gastroenterology fellow who treated Sawyer.

When Sawyer was diagnosed with Crohn's disease, his endoscopic and radiologic studies showed the presence of scar tissue in his bowels. This had likely formed because of long-standing chronic inflammation.

Since scar tissue cannot be treated with medications, Sawyer underwent a surgical procedure to remove the scarred part of his bowels.

“Like most teenagers, I imagined Saywer would rather be focusing on his friends and hobbies rather than be sitting in a doctor's office discussing the possibility of having a chronic, life-long disease,” Iskowitz said.

“Indeed, little did Sawyer know that within the next three months following that doctor’s appointment, he would both be diagnosed with Crohn’s disease, as well as undergo a surgery to remove the scarred part of his bowels.”

 

Sawyer spent months going through multiple hospital visits, surgeries and learning about life-long infusion medications.

Like any teenager, Sawyer found it difficult to stay calm and comfortable during his treatments.

That led him to begin detailing his experience through Gastrocomics, a series he created that includes plots and characters each representing different gastrointestinal diseases.

Gastrocomics features characters like “Anti-Inflammatory Man” (who actually represents Sawyer himself) and “Infusi-Ron” who battle villains like “Calamitous Crohns” and “I.B.S. Distress.”

Each character has different superpowers and takes on different villains, depending on which illness they represent.

Creating the comics brought Sawyer comfort during his journey, and he hopes to do the same for other kids in his position. 

“I drew up these things to hopefully bring light to a pretty bad situation,” Sawyer said.

“I want my comics to help kids feel comfortable. I want to help kids understand exactly what they have and that they don’t need to be afraid.”

Sawyer knows all too well how scary and uncertain it can be to constantly be in and out of the doctor’s office and how challenging it can be to keep up with medications and appointments; motivating others to continue with necessary treatment is another goal he hopes to fulfill with Gastrocomics.

I want them to feel very special about what they have and know they can do things just like everyone else can."

Sawyer Fernandez

“Even though everyone was really nice, it's still not fun going to the hospital all the time and living with something like this. It’s a blow to your self-esteem,” Sawyer said.

“With these characters that put you in their footsteps, they can make you feel like a superhero, because you're also fighting these diseases. It can make you think ‘I'm just like him. I'm also a superhero.’”

Sawyer’s comics have already impressed many people, including those close to him.

“It's very hard for parents having to see their kids experience so much pain. Sawyer has been through a lot, but I am extremely proud of my son. There are no words to describe it,” said his mom, Daney de la Fuente.

“I am incredibly proud of how Sawyer played his hand. He overcame—and continues to overcome—a very difficult time in his life by focusing his energy on helping others,” Iskowitz adds.

“I cannot wait to begin using Sawyer’s comics with my other patients, and I am beyond excited to see what he does next.”

Sawyer hopes to someday make a career out of his art – he'd like to get more into manga and animation. But for now, he hopes Gastrocomics will continue bringing comfort to other children living with GI Illnesses.

“I want them to feel very special about what they have and know they can do things just like everyone else can,” Sawyer said

“It's not going to end your life. It's there, and you have to deal with it. But you can fight it and get through it as much as possible.”


More Articles About: Digestive (GI) Conditions Crohn's and Colitis Crohn's Disease Digestive (GI) Procedures & Surgery
Health Lab word mark overlaying blue cells
Health Lab

Explore a variety of health care news & stories by visiting the Health Lab home page for more articles.

Media Contact Public Relations

Department of Communication at Michigan Medicine

[email protected]

734-764-2220

Stay Informed

Want top health & research news weekly? Sign up for Health Lab’s newsletters today!

Subscribe
Featured News & Stories bacteria blue yellow
Health Lab
New guideline for Helicobacter pylori includes change to primary treatment recommendation
The American Journal of Gastroenterology has published a new guideline on the treatment of Helicobacter pylori (H. pylori) Infection. 
Illustration of prescription bottle with a refill notice
Health Lab
In drive to deprescribe, heartburn drug study teaches key lessons
An effort to reduce use of PPI heartburn drugs in veterans because of overuse, cost and potential risks succeeded, but provides lessons about deprescribing efforts.
Researcher in white coat focuses gaze on microbes pictured in a twisting tube illustrating the gut
Health Lab
Fiber, genes and the gut microbiome: Study reveals possible triggers for inflammatory bowel disease
A new U-M study finds a complex interplay between diet, genes, and the gut microbiota that could explain why IBD develops.
Blurred image of health care professionals in blue scrubs pushing a gurney down a hallway
Health Lab
Primary care scarcity linked to more surgical emergencies, problems
Patients living in areas with the worst shortages of primary care providers are more likely to have emergency surgery, surgical complications and hospital readmissions.
Image of woman with scientific objects, focusing on insulin resistance
Health Lab
Large genetic study reveals causes for insulin resistance, metabolic syndrome
Study uncovers genetic components of insulin resistance.
human-internal-liver-drawing-white
Health Lab
How using new organ storage technology can improve liver transplantations
The process, also known as liver perfusion, works differently than traditional ischemic cold storage methods for donor livers by involving technology that recreates the optimal physiological conditions for the organ.