My Child Has Bravely Fought Her Brain Tumor. She’s Still Waiting for a Cure

As her young daughter battles a brain tumor, a mother advocates for more research — and funding — to combat childhood cancers of all kinds.

1:00 PM

Author | Shannon Hennessey

Our daughter, Ally, has been in cancer treatment most of her life.

She was diagnosed with a brain tumor and began chemotherapy at age 3. Her first chemotherapy treatment was before her first day of preschool.

MORE FROM MICHIGAN: Sign up for our weekly newsletter

Our initial line of defense were the chemo drugs vincristine, which came on the market in 1961, and carboplatin, which became available in 1986.

To put that into context, consider that the first disposable diapers came out in 1961, a time when people were watching The Andy Griffith Show on television. In 1986, the world was introduced to the laptop computer; kids were playing with Nintendo.

Think of how far those technologies have evolved since then.

And yet we're still using the same drugs to fight childhood cancer. Of all the federal funding for cancer research, just 4 percent goes toward pediatrics.

In Ally's case, the drugs stopped working after about one year of treatment. That put us back at square one, resetting her treatment with a new plan of attack. Then, when that didn't work, another plan. Then another.

In all, we tried four experimental protocols to combat her cancer between 2012 and 2014.

With each new drug, we signed more consent forms agreeing to things no parent wants to imagine but feeling unquestionably confident that the risks would be worth it to have our daughter here and healthy with us.

SEE ALSO: Chad Carr Movement Accelerating Childhood Brain Cancer Research

Ally (pictured above with Michigan Medicine pediatric oncologist Carl Koschmann, M.D.) completed treatment Aug. 4, 2014. For a brief moment, we had a break and life felt normal.

Then, in January 2016, her tumor became more aggressive.

She tried another drug that worked for a year and became less effective at controlling her tumor. Unfortunately, she's tried every available protocol. We find ourselves yet again waiting for something new to try, for a new drug to enter clinical trials so we have an option for Ally.

We don't want people to feel sympathy for us. In fact, we consider ourselves among the lucky ones. Ally, now 9 years old, is here with us  going to school, playing with friends and sharing holidays with the family.

Not every parent can say the same. In 2017, there are still too many childhood cancers that are terminal and we have lost so many friends to the disease.

But during Childhood Cancer Awareness Month in September, or anytime you hear someone talking about how children are waiting for cures, please know that it's not an abstract saying. Kids are waiting for cures, and we're proof that it isn't just lip service.

Ally is still waiting.

University of Michigan C.S. Mott Children's Hospital strives to find better, safer cures for childhood cancer. Learn how you can join the fight to Block Out Cancer


More Articles About: Children's Health Cancer Research Cancer: Help, Diagnosis & Treatment
Health Lab word mark overlaying blue cells
Health Lab

Explore a variety of health care news & stories by visiting the Health Lab home page for more articles.

Media Contact Public Relations

Department of Communication at Michigan Medicine

[email protected]

734-764-2220

Stay Informed

Want top health & research news weekly? Sign up for Health Lab’s newsletters today!

Subscribe
Featured News & Stories girl on left with tan hat beanie and black shirt and green writing and on right with mom smiling same outfit and matching shirts
Health Lab
Teen with bone marrow transplant shares cancer journey online
A teenager shares her rare lymphoma diagnosis and bone marrow transplant story online.
child looking at family outside of kitchen area
Health Lab
Encouraging spirituality in teens without forcing participation
Among parents who plan to attend religious services this holiday season, nearly half would insist their teen join even if they didn’t want to, a poll suggests.
syringes three in a row with one with a shot going into it on a light teal background
Health Lab
TNF inhibitors prevent complications in kids with Crohn’s disease, recommended as first-line therapies
Early treatment of pediatric Crohn’s disease with anti-tumor necrosis factor medications can substantially reduce the risk of perianal fistulas in Crohn’s disease. Michigan Medicine researchers confirmed this finding using prospective data. 
friends adults thanksgiving dinner table
Health Lab
How to safely celebrate the holidays and avoid getting sick
This holiday season, follow these five expert-approved steps to celebrate safely and avoid getting sick.
four tiles with top left washing hands with blue background, top right yellow background and two cutting boards with one having meat and one having cucumbers and knives, then bottom left is red background and pot of soup steaming and then bottom right open white fridge with food in it on black background
Health Lab
How to prevent your kids from getting food poisoning
About 48 million people fall victim to food poisoning each year. Prevent getting food poisoning with these six tips.
kid in corner sad with shadow of two parents holding hands on hips looking mad and room and everything is yellow and a shadow of close up of parent yelling at a child in corner
Health Lab
Naughty or nice? Many parents rely on threats to manage misbehavior
When young children’s behavior becomes challenging, many parents resort to threats – from taking away toys to threatening that Santa will skip their house, a national poll suggests.