Racial and ethnic designation inaccuracies in children's medical records may impede equity efforts

Michigan hospital collaborative uncovers substantial errors in data critical to identifying and addressing inequities and disparities in children’s health

11:00 AM

Author | Beata Mostafavi

hands on paper writing with a pen
Getty Images

Leaders at three Michigan hospitals aiming to address equity issues for pediatric patients wanted to start with inspecting data key to identifying potential inequities. 

What they learned: much of those data are inaccurate. 

A study from the Michigan Child Health Equity Collaborative, or Mi-CHEC, found substantial errors across the three health systems in racial and ethnic designations in their electronic medical records. 

Accuracy of these designations are important to clinical care improvement efforts yet error rates of race in electronic medical records ranged from 22% to 59% while errors in ethnicity ranged from 5% to 35%, according to the findings in JAMA Network Open. 

“The goal of MI-CHEC is to identify inequities affecting children’s health and implement improvement strategies to address them. But if the data regarding race and ethnicity are wrong, there’s a real risk of missing some inequities and even trying to correct inequities that may not exist,” said lead author and Mi-CHEC founder Gary L. Freed, M.D., M.P.H., professor in the department of pediatrics at the U-M Medical School.

“This is the first step to better understanding the misattribution in racial and ethnic designations in medical records. There are no perfect data; however, if we don’t know the degree of accuracy in the race and ethnicity of our patient populations, we are truly flying blind when we and others are assessing equity and disparity."

The study reflects the first published data from Mi-CHEC, which comprises the state’s three largest pediatric hospitals, including U-M Health C.S. Mott Children’s Hospital, Children’s Hospital of Michigan and Corewell Health Helen DeVos Children’s Hospital. 

Expanded designation choices associated with greater errors

Researchers compared the specific racial and designations made by more than 3,400 parents to what was listed in their children’s medical records in outpatient clinics, emergency departments and hospital units across health systems between 2023 and 2024. 

Reasons for the discrepancies are still being assessed, but authors point out associations between errors in designations and the evolving range and number of potential categories used by health systems for racial and ethnic attribution.

Options for race designation across hospitals ranged from six at one system to 49 in another while options for ethnicity ranged from two to 10. 

There are no perfect data; however, if we don’t know the degree of accuracy in the race and ethnicity of our patient populations, we are truly flying blind when we and others are assessing equity and disparity.”  

-Gary L. Freed, M.D., M.P.H.  

Some health systems have chosen consistency with the United States Census Bureau designations, Freed notes, while others have expanded the choices available for patients as part of inclusivity programs. 

Additionally, hospitals rarely verify the accuracy of racial and ethnic attribution in secondary data or health records, especially for children.

“There have been significant, well-intentioned efforts over the last several years at many institutions to expand the choices for patients to designate their own race or ethnicity to promote inclusion among our patient populations,” Freed said. 

“However, we found that a greater number of choices may lead to greater error in the electronic medical record.” 

It’s important to understand how these errors may affect quality improvement efforts when working to identify health inequities or disparities for children with such conditions as asthma, obesity, diabetes and other health issues, Freed notes. 

“Error rates of this magnitude influence the reliability of studies focused on inequities and disparities,” he said. “If we don’t know which children are which race or ethnicity we won’t know if there’s a problem and if efforts to fix the problem are successful or not.” 

“This may undermine strategies to improve care.” 

Freed adds that similar errors may be prevalent at other hospitals across the country, and collaborative members hope to encourage other systems to assess their own data accuracy as well. 

Mi-CHEC will also be working on quality improvement efforts to both correct current error rates within the collaborative’s health systems and prevent future errors from occurring, he says. 

In the interim period, teams have developed statistical correction factors to improve accuracy in the collaborative’s assessments of inequities.

“These findings help us understand the limitations of our data and how we can account for those limitations as we continue our work to address inequities and disparities affecting pediatric patients and their families,” Freed said. 

Additional authors: Brittany Bogan, MHSA, and Susan Woolford, M.D., of U-M; Adam Nicholson, M.D., of Corewell Health Helen DeVos Children’s Hospital; and Deborah Niedbala, M.S.N., of the Children's Hospital of Michigan.

Study cited: “Error Rates in Race and Ethnicity Designation Across Large Pediatric Health Systems,” JAMA Network Open, doi:10.1001/jamanetworkopen.2024.31073

About Mi-CHEC: Mi-CHEC, funded in partnership with the Michigan Department of Health and Human Services, is designed to engage hospitals in identifying and measuring pediatric healthcare inequities within their organizations. Mi-CHEC facilitates the sharing of topics for investigation, research methods, data, and quality improvement strategies across member hospitals. Learn more.

Sign up for Health Lab newsletters today. Get medical tips from top experts and learn about new scientific discoveries every week by subscribing to Health Lab’s two newsletters, Health & Wellness and Research & Innovation.

Sign up for the Health Lab Podcast: Add us on Spotify, Apple Podcasts or wherever you get you listen to your favorite shows. 


More Articles About: All Research Topics Children's Health C.S. Mott Children’s Hospital Race and Ethnicity Health Care Delivery, Policy and Economics health disparities
Health Lab word mark overlaying blue cells
Health Lab

Explore a variety of health care news & stories by visiting the Health Lab home page for more articles.

Media Contact Public Relations

Department of Communication at Michigan Medicine

[email protected]

734-764-2220

Stay Informed

Want top health & research news weekly? Sign up for Health Lab’s newsletters today!

Subscribe
Featured News & Stories child looking at family outside of kitchen area
Health Lab
Encouraging spirituality in teens without forcing participation
Among parents who plan to attend religious services this holiday season, nearly half would insist their teen join even if they didn’t want to, a poll suggests.
friends adults thanksgiving dinner table
Health Lab
How to safely celebrate the holidays and avoid getting sick
This holiday season, follow these five expert-approved steps to celebrate safely and avoid getting sick.
syringes three in a row with one with a shot going into it on a light teal background
Health Lab
TNF inhibitors prevent complications in kids with Crohn’s disease, recommended as first-line therapies
Early treatment of pediatric Crohn’s disease with anti-tumor necrosis factor medications can substantially reduce the risk of perianal fistulas in Crohn’s disease. Michigan Medicine researchers confirmed this finding using prospective data. 
surgical area of clinicians drawn out with blue background
Health Lab
New tools that leverage NIH’s ‘All of Us’ dataset could improve anesthesia and surgical care
In a report in JAMA Surgery, researchers propose two novel tools that leverage the All of Us dataset to look at acute health events such as surgery.
man in pink shirt close up with hand on stomach
Health Lab
Potential culprit identified in lingering Crohn’s disease symptoms
A study from University of Michigan researchers may explain why some patients with Crohn’s disease continue to experience symptoms, even in the absence of inflammation.
four tiles with top left washing hands with blue background, top right yellow background and two cutting boards with one having meat and one having cucumbers and knives, then bottom left is red background and pot of soup steaming and then bottom right open white fridge with food in it on black background
Health Lab
How to prevent your kids from getting food poisoning
About 48 million people fall victim to food poisoning each year. Prevent getting food poisoning with these six tips.