Rare Eye Condition Inspires Parents to Create Cool Glasses for Kids

Born blind, Jonas Harrison’s developing sight sparked a philanthropic “Buy Sight, Give Sight” company, Jonas Paul Eyewear.

7:00 AM

Author | Shantell M. Kirkendoll

Jonas, suffering from Peters anomaly, and his parents

Three-year-old Jonas Harrison likes Dr. Seuss, counting, making animal sounds and the smell of food cooking in the kitchen, especially when it's his favorite, which happens to be bacon.

MORE FROM MICHIGAN: Subscribe to our weekly newsletter

In his short life, his mother says he's inspired his family to live life more fully, using all five senses, because he was born without one of his. Jonas was born blind, a result of a rare eye condition called Peters anomaly. At birth, his corneas were clouded with no light perception.

But by responding positively to an incredibly difficult personal struggle, his parents, Laura and Ben Harrison, of Grand Rapids, Michigan, are changing children's eyewear with a focus on helping children feel beautiful and confident in their glasses.

"When doctors (at University of Michigan Kellogg Eye Center) told us he had some potential for sight, I started looking for glasses," says Ben Harrison. "If he would have to wear glasses, I wanted him to look like a little stud muffin."

Realizing the gap in good fashion for kids, they created Jonas Paul Eyewear, a "Buy Sight, Give Sight" eyewear company that helps nonprofits provide eye exams, glasses and blindness-preventing supplements for children across the globe.

"We knew how helpless we felt and we had access to doctors and the care Jonas needed to have sight," Ben explains. "We wanted to pass that blessing on to other families."

Already, their goal — "to make an impact and change a life," says Laura Harrison — has helped 22,000 families in 64 countries.

Not that their own journey has been easy.

The Harrison family, including daughter Sophie. ( Photographs courtesy of Jill DeVries Photography)

After 21 surgeries, doctors have helped Jonas gain some vision, his medical odyssey charted by Kellogg Eye Center pediatric ophthalmologist Brenda Bohnsack, M.D., Ph.D., and cornea specialist Shahzad I. Mian, M.D.

"It requires a team of experts — not only physicians that can provide that care, but also low vision specialists, occupational therapists, optometry, nursing," says Mian. "One of the most important parts is good social and family support. Jonas is lucky to have parents so dedicated to his care."

Bohnsack researches congenital eye diseases and childhood glaucoma, noting Peters occurs in between 1 in 10,000 to 1 in 50,000 people.

Jonas has responded well to treatment, the doctors say. He's had corneal transplants, which are especially complex in youngsters because of their small eyes and strong inflammatory response, which raises the risk of rejecting the new tissue.

"With conditions like Peters anomaly and having glaucoma, there are going to be continuing challenges," Mian says. "Jonas is a remarkable child who has a drive and energy to succeed and be active. We're very optimistic that he will continue to do well, and, as our ability to provide better care for him improves, I'm hopeful we'll be able to help him maintain his vision for the rest of his life."

For more on Jonas Paul Eyewear, view a recent segment on Weekend TODAY featuring the family here.


More Articles About: Eye Health Eye Disorders Kellogg Eye Center Eye Care & Vision
Health Lab word mark overlaying blue cells
Health Lab

Explore a variety of health care news & stories by visiting the Health Lab home page for more articles.

Media Contact Public Relations

Department of Communication at Michigan Medicine

[email protected]

734-764-2220

Stay Informed

Want top health & research news weekly? Sign up for Health Lab’s newsletters today!

Subscribe
Featured News & Stories man on balance beam spinning blue background red pants starts blurry then gets clear
Health Lab
Olympic vision: strabismus, coloboma and eyeglasses on the world stage
Olympic gymnast Stephen Nedoroscik, affectionately dubbed “pommel horse guy” by the internet,has strabismus and coloboma, eye conditions that impact his vision. As Team USA continues to celebrate Nedoroscik and his Clark Kent-style frames, Christopher Gappy, M.D., shares more about strabismus, coloboma and Nedoroscik’s impact on public perception of glasses.
Zoom of hazel eye close up
Health Lab
Diabetes and your eyes: 4 things to know
Diabetes can damage your eyes and could lead to permanent vision loss without treatment. A U-M ophthalmologist shares four crucial things to know about diabetes and your eyes.
Health Lab
Retinitis Pigmentosa in Children: 5 Facts Families Should Know
The genetic disease that causes vision loss can affect all ages, including young people. Learn more about symptoms, risk factors and management.
Health Lab
Wet vs. Dry AMD: What’s the Difference?
Dry macular degeneration occurs when cells of the macula begin to thin and break down. It is characterized by drusen buildup and typically worsens over time. Wet macular degeneration happens when abnormal blood vessels grow in the back of the eye.
Health Lab
3 Ways Genetic Counselors Provide Clarity on Eye Disease
Trained to interpret variations in your DNA, these specialists can help confirm a vision-related diagnosis and guide family members in gauging their own risk.
Health Lab
7 Healthy Habits to Help Prevent Macular Degeneration
AMD affects the eyesight of millions. A Michigan Medicine specialist offers easy ways to help slow or prevent the disease.